Welcome to my blog in which I hope I can help my wife to raise awareness of her condition Fibromyalgia and maybe go some way to helping the partners, friends and family of those suffering with the same disease to understand from 'the other side'. I'm also a sufferer of depression and would like to share my thoughts on this and the battle i've had for nearly twenty years.

Enjoy reading and please feel free to leave comments.

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“You can never cross the ocean unless you have the courage to lose sight of the shore.” - Christopher Columbus

Wednesday, 24 February 2010

Read this on the FMA Boards from sammyjj5, Imagine...

I don`t want sympathy, I want understanding so imagine..............

Imagine being in pain, every hour of every day, and trying not to show it.
Imagine smiling, laughing, and acting as normal as you can when someone is tearing your muscles apart with their burning flamed hands.
Imagine your arms and legs encased in concrete, and your extremities all puffy and swollen.
Imagine your wrists, and hips, and elbows, and ankles feel like they are snapping.
Imagine the feeling of a tattoo being done, down your head and face, all day, every day, with no relief.
Imagine being so bone deep tired, and in pain that your brain is struggling to understand basic things.
Imagine a sicky migraine, every day, all day.
Imagine being scared to go to bed, because you know the duvet will hurt your feet and legs, or that a cuddle will hurt everywhere else.
Imagine being scared to go to bed because you will then have to get up again the next day.
Now imagine what it feels like to have all of this, and more, at the same time, because when I start to complain, that`s what it`s like.
Until then, when I only have "just" some of these, I smile and do as much as I can.
I act as normal as i can.
I cry on the inside until this point, or lock myself away to cry, then come out as normal.
Imagine you get to this point, and your family laugh at you for being stupid.
Imagine feeling like that, and you get joked about for taking too many tablets.
Imagine knowing, that everything you do will make the pain worse, but you do it anyway because you don`t want to be a burden.
Imagine how it feels on a good day, when you "only" hurt a bit all over, or "only" have a few symptoms, and have been strong, and appeared ok, then get called a wimp or weak, or a druggy, or old, or slow, or a cripple, or useless, or lazy, or selfish.
Imagine weighing up how much pain is going to come from everything you do. Picking the kettle up, dressing the baby, going in the bath, and a 1000 other things that you couldnt even think of.
Imagine then, how would you feel if this was you.
Imagine how easy it would be for me to just "give up" and take to my bed and never do anything again.
Imagine how strong I have to be to keep going, then remember, even steel breaks if bent too far.



I`m planning on writing it all out nicely and sticking it up as a poster in my kitchen. maybe then my husband and kids will actually read it and understand. not holding my breath though lol xxx

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